Welcome to National Spasmodic Torticollis Association web site

The mission of the National Spasmodic Torticollis Association is to support the needs and well being of affected individuals and families..

Over the years, NSTA has helped thousands of people in their search for relief from the pain and disability caused by ST


What is Spasmodic Torticollis?

Spasmodic Torticollis also known as "Cervical Dystonia" and is referred to by many simply as "torticollis", is a painful and debilitating neurological movement disorder. Approximately 3 in every 10,000 people - about 90,000 people in the United States - are known to suffer from Spasmodic Torticollis.

About NSTA

Our services are available to anyone, and if you or someone you know has symptoms that are similar of that of Spasmodic Torticollis, please contact our office for more information and find out what we can do in terms of support. This is not the case, there are people who understand. Remember... You Are Not Alone!

Treatment Options

ST movements often disappear in sleep and may not reappear for a short time, any where between 10 minutes and 4 hours after waking. Because of this, many people find relief by taking breaks during the day to lie on their backs. Touching the opposite side of the face or chin may also cause spasms to cease temporarily.

National Spasmodic Torticollis Association (NSTA) Membership Information


Dystonia Advocacy Network

The Dystonia Advocacy Network (DAN) is a grassroots organization that brings dystonia-affected individuals together to speak out with a single, powerful voice on legislative and public policy issues which impact the dystonia community. Dystonia advocates develop relationships with their legislative leaders to help them understand the challenges of those living with dystonia. The DAN continuously works to adopt and advance a legislative agenda which raises awareness of dystonia, educates policymakers about dystonia, addresses patient care issues, and moves research forward.

Membership Information

Membership to join the NSTA is only $30.00 a year. We reward our dues-paying members with:
» One years subscription of the ST Quarterly Magazine (Four issues are published a year)
» Member prices for "Helpful Products" including literature such as the Spasmodic Torticollis Handbook and Living well with Dystonia.
» We also have a Physical Therapy video that will teach you exercises that can be performed at home.
» Member registration prices for NSTA symposiums, held at least annually...

Have Questions? Need Help?

Finding someone who understand what you are going through is difficult when it comes to Spasmodic Torticollis. Sometimes family members and friends, with their good intentions cannot provide provide the level of support you require because they cannot understand what you are going through.
Do you have questions about your symptoms, available treatments, or anything else concerning spasmodic torticollis?
You can contact us today. We will do our best to answer any inquires you have.

Latest News & Events

  • Another Successful Zent-A-Thon 5k Run/Walk Fundraiser

    The Zent-A-Thon 5K Run/Walk was held on Saturday, May 30th at Mile Square Park in Fountain Valley, California. This is the 3nd time the NSTA worked in conjunction with the Parkinson’s and Movement Disorder Foundation (PMDF) to host this event. I am happy to report that the fundraiser was a huge success! By the time we finished registering and checking in everyone we had 130 people in attendance. The weather was perfect for our fundraiser event. “June Gloom” was once […]

  • Zent-A-Thon 5k Run/Walk Fundraiser – May 30, 2015

    A Fundraiser for Movement Disorders May 30, 2015 NSTA along with the Parkinson’s and Movement Disorder Foundation (www.pmdf.org) are going to host a 5K Walk/Run fundraiser at Mile Square Park in Fountain Valley, California. The event would help raise funds for both organizations while spreading awareness about Parkinson’s & Movement Disorders. Registration is only $20. You can also make an additional donation as well when you register. If you are unable to attend, you can simply make a donation. All […]

  • Online Research Study on Reproductive Factors and Cervical Dystonia (Uploaded 03.02.15)

    University of Tennessee Health Science Center Reproductive Factors and Cervical Dystonia Description of project: We are conducting an online research study related to the correlation between various reproductive, hormonal and environmental factors with cervical dystonia. Your participation will take approximately 30 minutes and will require the completion of an online questionnaire. To participate: • You must have been diagnosed with cervical dystonia • You must be at least 18 years of age • You must have access to the internet […]

  • NSTA San Diego Conference – June 13, 2015

    On June 13, 2015, the NSTA is hosting a one day conference in San Diego, California. Our conference will take place at the Old Town San Diego Marriott Courtyard. The address is 2435 Jefferson Street, San Diego, CA 92110. Parking for conference attendees is $5. There is also free public parking located close to the hotel on Jefferson Street or Conde Street. Many meeting attendees tend to park on those streets. The NSTA conference will take place just before the […]

  • Merz North America Pledges $1,000,000 in Fellowship Grants to the Dystonia Medical Research Foundation (DMRF)

    Merz North America Pledges $1,000,000 in Fellowship Grants to the Dystonia Medical Research Foundation (DMRF) November 10, 2014 09:00 AM Eastern Standard Time GREENSBORO, N.C.–(BUSINESS WIRE)–Merz North America (U.S. affiliate of the global Merz Pharma Group), today announced that it will award up to $1,000,000 in grants to the Dystonia Medical Research Foundation’s (DMRF) Clinical Fellowship Training Program over the course of the next three years. Merz’s contribution will fund one-year fellowship grants to advance physician training and education in […]