Welcome to National Spasmodic Torticollis Association web site

The mission of the National Spasmodic Torticollis Association is to support the needs and well being of affected individuals and families..

Over the years, NSTA has helped thousands of people in their search for relief from the pain and disability caused by ST


What is Spasmodic Torticollis?

Spasmodic Torticollis also known as "Cervical Dystonia" and is referred to by many simply as "torticollis", is a painful and debilitating neurological movement disorder. Approximately 3 in every 10,000 people - about 90,000 people in the United States - are known to suffer from Spasmodic Torticollis.

About NSTA

Our services are available to anyone, and if you or someone you know has symptoms that are similar of that of Spasmodic Torticollis, please contact our office for more information and find out what we can do in terms of support. This is not the case, there are people who understand. Remember... You Are Not Alone!

Treatment Options

ST movements often disappear in sleep and may not reappear for a short time, any where between 10 minutes and 4 hours after waking. Because of this, many people find relief by taking breaks during the day to lie on their backs. Touching the opposite side of the face or chin may also cause spasms to cease temporarily.

National Spasmodic Torticollis Association (NSTA) Membership Information


Dystonia Advocacy Network

The Dystonia Advocacy Network (DAN) is a grassroots organization that brings dystonia-affected individuals together to speak out with a single, powerful voice on legislative and public policy issues which impact the dystonia community. Dystonia advocates develop relationships with their legislative leaders to help them understand the challenges of those living with dystonia. The DAN continuously works to adopt and advance a legislative agenda which raises awareness of dystonia, educates policymakers about dystonia, addresses patient care issues, and moves research forward.

Membership Information

Membership to join the NSTA is only $30.00 a year. We reward our dues-paying members with:
» One years subscription of the ST Quarterly Magazine (Four issues are published a year)
» Member prices for "Helpful Products" including literature such as the Spasmodic Torticollis Handbook and Living well with Dystonia.
» We also have a Physical Therapy video that will teach you exercises that can be performed at home.
» Member registration prices for NSTA symposiums, held at least annually...

Have Questions? Need Help?

Finding someone who understand what you are going through is difficult when it comes to Spasmodic Torticollis. Sometimes family members and friends, with their good intentions cannot provide provide the level of support you require because they cannot understand what you are going through.
Do you have questions about your symptoms, available treatments, or anything else concerning spasmodic torticollis?
You can contact us today. We will do our best to answer any inquires you have.

Latest News & Events

  • NSTA East Elmhurst, New York Conference – November 7, 2015

    On November 7, 2015, the National Spasmodic Torticollis Association (NSTA) is hosting a one day conference on spasmodic torticollis/cervical dystonia in East Elmhurst, New York. Registration for the conference is FREE thanks to our major sponsor Merz Pharmaceuticals (the makers of Xeomin). Our conference will take place at the Courtyard Marriott LaGuardia Airport. The address is 9010 Ditmars Blvd, East Elmhurst, NY 11369. Parking for conference attendees is $10. The NSTA has blocked off a limited number of rooms for […]

  • John Barth and Team BluFrog Train for Triatholon – September 07, 2015

    In 2013, NSTA friend and member John Barth successfully completed the Houston Town Lake Triathlon under Team NSTA during Labor Day weekend. Team NSTA’s Fundraising goal was set at $5,000. The team raised $5,900 for our organization surpassing their goal. Coming in 2nd place in the Giving Challenge meant an additional $750 was donated to NSTA. We are so proud and thankful to John Barth and John Josser (riding like the wind in the cycling portion of the triathlon) for […]

  • Seattle, Washington Support Group (New Group)

    Dear Friends of the NSTA, I had the pleasure of speaking with Judy Yoon from Seattle, WA on the phone last week. She is a pleasant and enthusiastic woman who was recently diagnosed with Spasmodic Torticollis/Cervical Dystonia. Judy has started a support group in Seattle and would like everyone in the area to know about it. She has contacted several dystonia organizations to get the word out. The following is a information on on Judy and her up coming support […]

  • Another Successful Zent-A-Thon 5k Run/Walk Fundraiser

    The Zent-A-Thon 5K Run/Walk was held on Saturday, May 30th at Mile Square Park in Fountain Valley, California. This is the 3nd time the NSTA worked in conjunction with the Parkinson’s and Movement Disorder Foundation (PMDF) to host this event. I am happy to report that the fundraiser was a huge success! By the time we finished registering and checking in everyone we had 130 people in attendance. The weather was perfect for our fundraiser event. “June Gloom” was once […]

  • Zent-A-Thon 5k Run/Walk Fundraiser – May 30, 2015

    A Fundraiser for Movement Disorders May 30, 2015 NSTA along with the Parkinson’s and Movement Disorder Foundation (www.pmdf.org) are going to host a 5K Walk/Run fundraiser at Mile Square Park in Fountain Valley, California. The event would help raise funds for both organizations while spreading awareness about Parkinson’s & Movement Disorders. Registration is only $20. You can also make an additional donation as well when you register. If you are unable to attend, you can simply make a donation. All […]