Welcome to National Spasmodic Torticollis Association web site

The mission of the National Spasmodic Torticollis Association is to support the needs and well being of affected individuals and families..

Over the years, NSTA has helped thousands of people in their search for relief from the pain and disability caused by ST


What is Spasmodic Torticollis?

Spasmodic Torticollis also known as "Cervical Dystonia" and is referred to by many simply as "torticollis", is a painful and debilitating neurological movement disorder. Approximately 3 in every 10,000 people - about 90,000 people in the United States - are known to suffer from Spasmodic Torticollis.

About NSTA

Our services are available to anyone, and if you or someone you know has symptoms that are similar of that of Spasmodic Torticollis, please contact our office for more information and find out what we can do in terms of support. This is not the case, there are people who understand. Remember... You Are Not Alone!

Treatment Options

ST movements often disappear in sleep and may not reappear for a short time, any where between 10 minutes and 4 hours after waking. Because of this, many people find relief by taking breaks during the day to lie on their backs. Touching the opposite side of the face or chin may also cause spasms to cease temporarily.

National Spasmodic Torticollis Association (NSTA) Membership Information


Dystonia Advocacy Network

The Dystonia Advocacy Network (DAN) is a grassroots organization that brings dystonia-affected individuals together to speak out with a single, powerful voice on legislative and public policy issues which impact the dystonia community. Dystonia advocates develop relationships with their legislative leaders to help them understand the challenges of those living with dystonia. The DAN continuously works to adopt and advance a legislative agenda which raises awareness of dystonia, educates policymakers about dystonia, addresses patient care issues, and moves research forward.

Membership Information

Membership to join the NSTA is only $30.00 a year. We reward our dues-paying members with:
» One years subscription of the ST Quarterly Magazine (Four issues are published a year)
» Member prices for "Helpful Products" including literature such as the Spasmodic Torticollis Handbook and Living well with Dystonia.
» We also have a Physical Therapy video that will teach you exercises that can be performed at home.
» Member registration prices for NSTA symposiums, held at least annually...

Have Questions? Need Help?

Finding someone who understand what you are going through is difficult when it comes to Spasmodic Torticollis. Sometimes family members and friends, with their good intentions cannot provide provide the level of support you require because they cannot understand what you are going through.
Do you have questions about your symptoms, available treatments, or anything else concerning spasmodic torticollis?
You can contact us today. We will do our best to answer any inquires you have.

Latest News & Events

  • A NSTA Fundraiser for ST/CD and Movement Disorders is Just Around the Corner!

    On Saturday, May 21, 2016, the NSTA is hosting a 5K Walk/Run fundraiser at Mile Square Park in Fountain Valley, California. Proceeds will help the National Spasmodic Torticollis Association in providing information and support to people spasmodic torticollis/cervical dystonia. If you are in Orange County, LA County or San Diego County come and participate in the event! Bring your family and friends, spend Saturday morning with us and help us raise funds and raise awareness in the community. Registration is […]

  • NSTA Kentucky/Ohio Regional Conference

    The NSTA is cancelling the April 30, 2016, Kentucky/Ohio Regional Conference on Saturday, April 30th. On April 1st, Christian, the son of our Vice President, Diane Truong, lost his battle with depression and passed away. Christian Truong was a gentle and kind person who sincerely cared for others. Since the first day I met him when he was a teenager 18 years ago, he has maintained love for the people, a sincere concern for their well-being and carried an admiral […]

  • NSTA East Elmhurst, New York Conference – November 7, 2015

    On November 7, 2015, the National Spasmodic Torticollis Association (NSTA) is hosting a one day conference on spasmodic torticollis/cervical dystonia in East Elmhurst, New York. Registration for the conference is FREE thanks to our major sponsor Merz Pharmaceuticals (the makers of Xeomin). Our conference will take place at the Courtyard Marriott LaGuardia Airport. The address is 9010 Ditmars Blvd, East Elmhurst, NY 11369. Parking for conference attendees is $10. The NSTA has blocked off a limited number of rooms for […]

  • John Barth and Team BluFrog Train for Triatholon – September 07, 2015

    In 2013, NSTA friend and member John Barth successfully completed the Houston Town Lake Triathlon under Team NSTA during Labor Day weekend. Team NSTA’s Fundraising goal was set at $5,000. The team raised $5,900 for our organization surpassing their goal. Coming in 2nd place in the Giving Challenge meant an additional $750 was donated to NSTA. We are so proud and thankful to John Barth and John Josser (riding like the wind in the cycling portion of the triathlon) for […]

  • Seattle, Washington Support Group (New Group)

    Dear Friends of the NSTA, I had the pleasure of speaking with Judy Yoon from Seattle, WA on the phone last week. She is a pleasant and enthusiastic woman who was recently diagnosed with Spasmodic Torticollis/Cervical Dystonia. Judy has started a support group in Seattle and would like everyone in the area to know about it. She has contacted several dystonia organizations to get the word out. The following is a information on on Judy and her up coming support […]