Welcome to National Spasmodic Torticollis Association web site

The mission of the National Spasmodic Torticollis Association is to support the needs and well being of affected individuals and families..

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Over the years, NSTA has helped thousands of people in their search for relief from the pain and disability caused by ST

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What is Spasmodic Torticollis?

Spasmodic Torticollis also known as "Cervical Dystonia" and is referred to by many simply as "torticollis", is a painful and debilitating neurological movement disorder. Approximately 3 in every 10,000 people - about 90,000 people in the United States - are known to suffer from Spasmodic Torticollis.
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About NSTA

Our services are available to anyone, and if you or someone you know has symptoms that are similar of that of Spasmodic Torticollis, please contact our office for more information and find out what we can do in terms of support. This is not the case, there are people who understand. Remember... You Are Not Alone!
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Treatment Options

ST movements often disappear in sleep and may not reappear for a short time, any where between 10 minutes and 4 hours after waking. Because of this, many people find relief by taking breaks during the day to lie on their backs. Touching the opposite side of the face or chin may also cause spasms to cease temporarily.

National Spasmodic Torticollis Association (NSTA) Membership Information

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Dystonia Advocacy Network

The Dystonia Advocacy Network (DAN) is a grassroots organization that brings dystonia-affected individuals together to speak out with a single, powerful voice on legislative and public policy issues which impact the dystonia community. Dystonia advocates develop relationships with their legislative leaders to help them understand the challenges of those living with dystonia. The DAN continuously works to adopt and advance a legislative agenda which raises awareness of dystonia, educates policymakers about dystonia, addresses patient care issues, and moves research forward.
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Membership Information

Membership to join the NSTA is only $30.00 a year. We reward our dues-paying members with:
» One years subscription of the ST Quarterly Magazine (Four issues are published a year)
» Member prices for "Helpful Products" including literature such as the Spasmodic Torticollis Handbook and Living well with Dystonia.
» We also have a Physical Therapy video that will teach you exercises that can be performed at home.
» Member registration prices for NSTA symposiums, held at least annually...
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Have Questions? Need Help?

Finding someone who understand what you are going through is difficult when it comes to Spasmodic Torticollis. Sometimes family members and friends, with their good intentions cannot provide provide the level of support you require because they cannot understand what you are going through.
Do you have questions about your symptoms, available treatments, or anything else concerning spasmodic torticollis?
You can contact us today. We will do our best to answer any inquires you have.

Latest News & Events

  • Merz North America Pledges $1,000,000 in Fellowship Grants to the Dystonia Medical Research Foundation (DMRF)

    Merz North America Pledges $1,000,000 in Fellowship Grants to the Dystonia Medical Research Foundation (DMRF) November 10, 2014 09:00 AM Eastern Standard Time GREENSBORO, N.C.–(BUSINESS WIRE)–Merz North America (U.S. affiliate of the global Merz Pharma Group), today announced that it will award up to $1,000,000 in grants to the Dystonia Medical Research Foundation’s (DMRF) Clinical Fellowship Training Program over the course of the next three years. Merz’s contribution will fund one-year fellowship grants to advance physician training and education in […]

  • Online Research Study on Reproductive Factors and Cervical Dystonia (Uploaded 10.01.14)

    University of Tennessee Health Science Center Reproductive Factors and Cervical Dystonia Description of project: We are conducting an online research study related to the correlation between various reproductive, hormonal and environmental factors with cervical dystonia. Your participation will take approximately 30 minutes and will require the completion of an online questionnaire. To participate: • You must have been diagnosed with cervical dystonia • You must be at least 18 years of age • You must have access to the internet […]

  • NSTA Las Vegas Symposium – September 20 – 21, 2014 (Updated 12.02.14) 20140920_084157

    The 25th Annual NSTA Symposium The 2014 Las Vegas symposium has come and gone and we are happy to report that everyone who attended enjoyed the program. It is a huge endeavor to organize a symposium that requires the teamwork of a group of people at the NSTA.We would like to thank our Chairman of the Medical Advisory Board, Dr. Mark LeDoux for all his efforts in coordinating with inviting the guest speakers, coordinating with the speakers in regards to […]

  • NSTA Atlanta, Georgia Symposium – October 19 – 20, 2013 icon-atlanta

    The NSTA hosted the 2013 symposium in Atlanta, Georgia on October 19th and 20th and everyone who attended really enjoyed the program. On Friday the NSTA organized a nice outdoor activity for people flying in early. Twenty-five people signed up for the Atlanta Botanical Gardens Tour. We were a little concerned because it had rained the day before however the weather was perfect on Friday. It was sunny but not hot with a high of 70 degrees. A chartered bus […]

  • Zent-A-Thon 5K Run/Walk on Saturday, June 30, 2012 is a Huge Success! zent-a-thon-Img_0955

    We received almost $4,000 in registrations and donations. The Zent-A-Thon 5K Run/Walk was held on Saturday, June 30th at Mile Square Park in Fountain Valley, California. NSTA worked in conjunction with the Parkinson’s and Movement Disorder Foundation (PMDF) and the American Parkinson’s Disease Association (APDA) to host this event. I am happy to report that the fundraiser was a huge success! 125 registered and more than 150 people attended. The weather was perfect that day! It was 91 degrees and […]