Welcome to National Spasmodic Torticollis Association web site

The mission of the National Spasmodic Torticollis Association is to support the needs and well being of affected individuals and families..

Over the years, NSTA has helped thousands of people in their search for relief from the pain and disability caused by ST


Treatment Options

ST movements often disappear in sleep and may not reappear for a short time, any where between 10 minutes and 4 hours after waking. Because of this, many people find relief by taking breaks during the day to lie on their backs. Touching the opposite side of the face or chin may also cause spasms to cease temporarily.

What is Spasmodic Torticollis?

Spasmodic Torticollis also known as "Cervical Dystonia" and is referred to by many simply as "torticollis", is a painful and debilitating neurological movement disorder. Approximately 3 in every 10,000 people - about 90,000 people in the United States - are known to suffer from Spasmodic Torticollis.

About NSTA

Our services are available to anyone, and if you or someone you know has symptoms that are similar of that of Spasmodic Torticollis, please contact our office for more information and find out what we can do in terms of support. This is not the case, there are people who understand. Remember... You Are Not Alone!

National Spasmodic Torticollis Association (NSTA) Membership Information


Dystonia Advocacy Network

The Dystonia Advocacy Network (DAN) is a grassroots organization that brings dystonia-affected individuals together to speak out with a single, powerful voice on legislative and public policy issues which impact the dystonia community. Dystonia advocates develop relationships with their legislative leaders to help them understand the challenges of those living with dystonia. The DAN continuously works to adopt and advance a legislative agenda which raises awareness of dystonia, educates policymakers about dystonia, addresses patient care issues, and moves research forward.

Membership Information

Membership to join the NSTA is only $30.00 a year. We reward our dues-paying members with:
» One years subscription of the ST Quarterly Magazine (Four issues are published a year)
» Member prices for "Helpful Products" including literature such as the Spasmodic Torticollis Handbook and Living well with Dystonia.
» We also have a Physical Therapy video that will teach you exercises that can be performed at home.
» Member registration prices for NSTA symposiums, held at least annually...

Have Questions? Need Help?

Finding someone who understand what you are going through is difficult when it comes to Spasmodic Torticollis. Sometimes family members and friends, with their good intentions cannot provide provide the level of support you require because they cannot understand what you are going through.
Do you have questions about your symptoms, available treatments, or anything else concerning spasmodic torticollis?
You can contact us today. We will do our best to answer any inquires you have.

Latest News & Events

  • Southern California Regional Conference – Saturday March 25, 2017

    The NSTA is hosting a SoCal Regional Conference on Saturday, March 25, 2017. The conference will take place at the Long Beach Marriott, 4700 Airport Plaza Drive, Long Beach, California  90815. Registration for the conference is FREE thanks to our sponsors.     The NSTA is hosting a SoCal Regional Conference on Saturday, March 25, 2017. The conference will take place at the Long Beach Marriott, 4700 Airport Plaza Drive, Long Beach, California  90815. Registration for the conference is FREE […]

  • Volunteers Needed for Research Survey – “Reproductive Factors and Cervical Dystonia”

    Dear Friends of the NSTA The “Reproductive Factors and Cervical Dystonia” study being conducted by the Chairman of our Medical Advisory Board, Dr. Mark LeDoux has been announced in the ST Quarterly magazine for over a year. We have been informed that over 1000 dystonia respondents participated in the study however they have less than 500 controls. The goal is to accumulate information from 1500 people diagnosed with cervical dystonia along with matching numbers of controls to make strong statistical […]

  • Dystonia versus Spasticity by Drake D. Duane, MS MD

    These two are very different terms in medical language. Both imply muscle “spasm” or involuntary contraction; however, both are caused not by muscle disorders, but by brain or spinal cord disorders. Any of us might experience a muscle spasm as say in a muscle cramp or after any painful injury muscles may tighten up. These are muscle spasms, but not dystonia or spasticity. A source of confusion is an old term for torticollis “spastic torticollis.” However, both words are not […]

  • Dystonia Advocates’ From Across the Country Convened in Washington, D.C. By Jeff Shair

    It was an honor and a privilege that I was asked to represent the NSTA this year for Dystonia Advocacy Day. Representatives from Dystonia Advocacy Network (DAN) assembled in Washington on Capitol Hill for the purpose of bringing awareness to the cause and to lobby for more funds for the disorder. In actuality, it was a two-day event that took place from April 12-13. On the first day of the meeting, we were trained how to advocate to our legislators […]

  • NSTA Hosts Two Successful Fundraisers!

    The NSTA hosts two major fundraisers annually to raise funds and spread awareness of cervical dystonia. One fundraiser is in the form of a 5k Walk/Run called the Zent-A-Thon that is held together with the Parkinson’s and Movement Disorder Foundation (PMDF, www.pmdf.org). The other fundraiser involves NSTA joining a dozen non-profit food booths at the Fountain Valley, California summer festival. The NSTA has hosted these two fundraisers for the past couple of years with great success and I am happy […]