About NSTA - National Spasmodic Torticollis Association

Tired of Your Cervical Dystonia? ASPEN Research Study Now Enrolling

19 Nov

Is your cervical dystonia medication wearing off too soon, with the pain returning? You’re not alone. A Phase 3 global research study called ASPEN, sponsored by Revance, needs people aged 18 to 80 who have been diagnosed with isolated cervical dystonia and who haven’t had a botulinum toxin injection within the previous 14 weeks. The […]

2017 Zent-A-Thon 5K Walk/Run Fundraiser – June 10, 2017

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On Saturday, June 10th, the Parkinson’s and Movement Disorder Foundation (PMDF) and the NSTA hosted the seventh Zent-A-Thon  5K Walk/Run fundraiser at Mile Square Park. Despite the muggy weather and short shower early in the morning, we had a great turnout. Over 125 people attended the Zent-A-Thon, making this our largest attendance to date!  A […]

Our Fundraiser with a Different Name is Still as Sweet! – MOVE4U 5K Walk/Run at Mile Square Park

24 Feb

On Saturday, May 19, 2018, the NSTA is hosting a 5K Walk/Run fundraiser at Mile Square Park in Fountain Valley, California together with the Parkinson’s and Movement Disorder Foundation(PMDF) . Proceeds will help the NSTA in providing information and support to people spasmodic torticollis/cervical dystonia and the PMDF raise funds to support research. If you […]

2017 Summer Fundraiser for the Parkinson’s and Movement Disorders

03 May

The National Spasmodic Torticollis Association (NSTA) and Parkinson’s and Movement Disorder Foundation (PMDF) is hosting a fundraiser for Parkinson’s and Movement Disorders (which includes dystonia).  On Saturday, June 10, 2017, we are hosting a 5K Walk/Run fundraiser at Mile Square Park in Fountain Valley, California. Proceeds will help the NSTA and PMDF in providing supporting the […]

Southern California Regional Conference – Saturday March 25, 2017

15 Feb

The NSTA is hosting a SoCal Regional Conference on Saturday, March 25, 2017. The conference will take place at the Long Beach Marriott, 4700 Airport Plaza Drive, Long Beach, California  90815. Registration for the conference is FREE thanks to our sponsors.     The NSTA is hosting a SoCal Regional Conference on Saturday, March 25, […]

Volunteers Needed for Research Survey – “Reproductive Factors and Cervical Dystonia”

04 Nov

Dear Friends of the NSTA The “Reproductive Factors and Cervical Dystonia” study being conducted by the Chairman of our Medical Advisory Board, Dr. Mark LeDoux has been announced in the ST Quarterly magazine for over a year. We have been informed that over 1000 dystonia respondents participated in the study however they have less than […]

Dystonia Advocates’ From Across the Country Convened in Washington, D.C. By Jeff Shair

26 Sep

It was an honor and a privilege that I was asked to represent the NSTA this year for Dystonia Advocacy Day. Representatives from Dystonia Advocacy Network (DAN) assembled in Washington on Capitol Hill for the purpose of bringing awareness to the cause and to lobby for more funds for the disorder. In actuality, it was […]

NSTA Hosts Two Successful Fundraisers!

02 Aug

The NSTA hosts two major fundraisers annually to raise funds and spread awareness of cervical dystonia. One fundraiser is in the form of a 5k Walk/Run called the Zent-A-Thon that is held together with the Parkinson’s and Movement Disorder Foundation (PMDF, www.pmdf.org). The other fundraiser involves NSTA joining a dozen non-profit food booths at the […]

NSTA Summerfest Fundraiser – Fountain Valley, California

21 Jun

The Fountain Valley Summerfest Committee, in partnership with the City of Fountain Valley, California is launching its 8th annual community celebration called “Fountain Valley Summerfest” to be held June 24, 25, and 26 at the Fountain Valley Sports Park at Brookhurst and Heil. This 4-day celebration will include carnival rides, food and beverage booths, game […]