December 2021 The following is an update of a column I wrote for the Spring 2015 issue of the ST Quarterly on my unusual and successful treatment for my Spasmodic Torticollis (ST). Although I still have muscle spasms in my cervical region, they are generally quite mild and painless, I have free movement and correct […]
Persons with ALL forms of dystonia are invited to join us for our virtual support group meeting on Saturday, 5/18 from 1-3:00 p.m. Pacific time when JAYME JONES, a Certified Yoga Instructor, is our guest presenter. The title of Jayme Jones’ presentation is CONNECTIONS FOR HEALTH & WELLNESS. Participation in any discussion is always voluntary. […]
Dear Brain Awareness Week Partners, Brain Awareness Week—March 15-21—is less than two months away, and we’re looking forward to hearing how you plan to celebrate in your community! Partners can now log in to the Brain Awareness Week website to post your event information on the Calendar of Events. With the Covid-19 pandemic continuing to […]
We invite you to become a dystonia advocate and help to support research funding, access to treatment and help Members of Congress know what dystonia is and how it changes lives. In 2021, the Dystonia Advocacy Network (DAN) will host a virtual Advocacy Day on March 3rd that will launch our year-long advocacy activities and […]
Dear Friends of the NSTA, The holiday season is just around the corner and with everyone preparing by shopping early for friends and family, we want to remind you that you can do so and help support the NSTA and other charities by shopping at smile.amazon.com, or to donate items directly from your AmazonSmile Charity […]
WANT TO KNOW MORE ABOUT SPASMODIC TORTICOLLIS/CERVICAL DYSTONIA? The NSTA Symposium is Back! It is with a grateful thank you to the generous donations from Diane Truong, the late emeritus board member Bob Farmer, and from our sponsors Allergan Inc., Ipsen, MedTronics and US WorldMeds LLC, that we are proud to host our first symposium […]
37-year old patient with cervical dystonia Original story published on https://amadys.fr/temoignage/temoignage-de-m-adherent-dystonie-cervicale-se-reeduquer-apprendre-a-bien-vivre-maladie/ Having worked for several years as both a tour guide and a teacher in Paris, while pursuing my PhD in art history, I was diagnosed last year at the age of 36 with cervical dystonia. Receiving this diagnosis – which came, fortunately enough, only […]
Botulinum toxin is a widely used treatment for cervical dystonia, but many patients find that it wears off before they can get another shot and some have problems with the side effects. Is there a better answer? Think about volunteering for a research study and help to find out. A new investigational study drug, DAXI […]
The 4th International Congress on Treatment of Dystonia 2019 covers topics such as: Teatment of Dystonia Dystonia Deep brain Stimulation Dystonias are amongst the most common movement disorders. Botulinum toxin and deep brain stimulation have revolutionized their therapy. However, there are still considerable unmet therapeutic needs. This was the reason to organise an International Congress […]
Is your cervical dystonia medication wearing off too soon, with the pain returning? You’re not alone. A Phase 3 global research study called ASPEN, sponsored by Revance, needs people aged 18 to 80 who have been diagnosed with isolated cervical dystonia and who haven’t had a botulinum toxin injection within the previous 14 weeks. The […]
The 2018 fall issue of the ST Quarterly magazine will be mailed out soon. We have some interesting articles including need-to-know information on what is involved when you participate in a drug study. The following is the article that contains this information that is in the upcoming fall issue. We hope that you find this […]
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On Saturday, June 10th, the Parkinson’s and Movement Disorder Foundation (PMDF) and the NSTA hosted the seventh Zent-A-Thon 5K Walk/Run fundraiser at Mile Square Park. Despite the muggy weather and short shower early in the morning, we had a great turnout. Over 125 people attended the Zent-A-Thon, making this our largest attendance to date! A […]