The Dystonia Advocacy Network (DAN) is a grassroots organization that brings dystonia-affected individuals together to speak out with a single, powerful voice on legislative and public policy issues which impact the dystonia community.
The DAN welcomes and represents individuals with all forms of dystonia, and is led by the following dystonia organizations:
- Benign Essential Blepharospasm Research Foundation (BEBRF)
- ST/Dystonia, Inc.
- Dystonia Medical Research Foundation (DMRF)
- National Spasmodic Dysphonia Association (NSDA)
- National Spasmodic Torticollis Association (NSTA)
Dystonia advocates develop relationships with their legislative leaders to help them understand the challenges of those living with dystonia. The DAN continuously works to adopt and advance a legislative agenda which raises awareness of dystonia, educates policymakers about dystonia, addresses patient care issues, and moves research forward.
For more information please visit the website of the Dystonia Advocacy Coalition at www.dystonia-advocacy.org.