About NSTA - National Spasmodic Torticollis Association

Helpful Links & Resources

Organizations that Provide Information and Support

Benign Essential Belpharospasm Research Foundation Inc. Undertakes, promotes, develops and carries on the search for the cause and a cure for benign essential blepharospasm and other related disorders and infirmities of the facial musculature.
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Care 4 Dystonia An educational non-profit organization committed to increasing the awareness of dystonia, the quality and standards of care, and broaden the distribution of research funding.
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Dystonia Medical Research Foundation (DMRF) Founded in 1976, the mission of the Dystonia Medical Research Foundation is three-fold: to advance research for more effective treatments and ultimately a cure, to promote awareness and education, and to support the needs and well being of affected individuals and families.
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International Essential Tremor Foundation A worldwide support and information resource for people diagnosed with essential tremor.
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National Spasmodic Dysphonia Association The organization provides support to Spasmodic Dysphonia patients through formal support groups, activities, and periodic newsletters. NSDA is dedicated to research, awareness, and support.
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National Organization for Rare Disorders (NORD) A unique federation of more than 140 not-for-profit voluntary health organizations serving people with rare disorders and disabilities. Thousands of affected individuals and their families–as well as support groups, health care and human service professionals, and advocates for people with rare disorders and disabilities–rely on NORD’s assistance and leadership. NORD is a charity and continues its mission through the kindness and generosity of its donors.
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Tardive Dyskinesia Center An organization that provides educational information on Tardive Dyskinesia (TD). TD is a result of damage to the bodily systems that process dopamine, and is typically caused by exposure to certain neurological medications – including Reglan. The symptoms of TD, which are irreversible and incurable, mimic those of Parkinson’s disease. Tardive Dyskinesia victims suffer from involuntary, repetitive movements which often continue after the drug is no longer used.
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The Bachmann-Strauss Dystonia & Parkinson Foundation, Inc. A non-profit organization that supports patients, family members, researchers, clinicians and volunteers working in partnership to find better medical treatments and a cure for dystonia and Parkinson’s disease.
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The Dystonia Society The Dystonia Society is a UK-wide charity providing support, advice and information for anyone affected by the neurological movement disorder known as dystonia.
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Tremor Action Network A non-profit organization whose mission is to spread the awareness of Essential Tremor by advocating for a cure through research. The Tremor Action Network educates the public about the million children and adults afflicted with Essential Tremor.
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