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National Spasmodic Torticollis Association
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Latest News and Events
2010 NSTA Symposium Information
December 29, 2009
The NSTA is hosting the 21st annually symposium in Baltimore, Maryland September 11th and 12th, 2010. So what exactly is a symposium? Who are going to be there? And what could possibly make you want to go and save these two dates in your calendar? Well, here is NSTA’s Symposium 101 for all of those wondering minds out there.
Imagine taking a Spasmodic Torticollis introductory course, condense it down into about one day—and there you have, the one third of NSTA’s symposium.
Ask yourself, how often can you find a group of doctors who specialize in treating Spasmodic Torticollis having coffee together, just waiting to answer any question you might have for them? Chances of that happening at your coffee shop are pretty slim. But no worries, our speakers at the symposium are all Spasmodic Torticollis experts, they might not be all drinking coffee at the same time, but the only reason they are all there is for you. There is a variety of topics that would be presented at the symposium, from the very basics of Spasmodic Torticollis—
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- the symptoms, possible causes - information on Botox and Botox Reimbursement - Tai chi demonstrations - treatments options (physical, metal, and medication) - details on ST surgical procedures - stress management
There will also be support group meetings and sessions for friends and family. The best part is, you can ask the specialists any questions afterwards!
Not everyone who comes to the symposium has no or little knowledge of this disorder. Many of you have already researched everything available there is to know about Spasmodic Torticollis, yet, you still feel like you were missing something. Here comes the last third of our symposium in which you will be playing a big role in–to help each other filling in the missing piece, for it is the support that you’ve been craving for all these years. Coming into the symposium, you’ll be surrounded by people who would know exactly what you are going through, have the chance to get advice from those who have had experience with the treatments you were considering, or have the opportunity to help others newer to their diagnosis than yourself to cope. You’d be reminded that you are not alone. Are you the shy type? Don’t worry, we have so many events ranging from the city tour, open bar, to a buffet dinner with entertainments…, there is no way you could possibly make it through the 2 days without making new friends!
We will be offering thirty minute neurofeedback sessions to symposium registrants. Neurofeedback sessions are limited to thirty-five available slots so early registration is recommended. The symposium site is the
Marriott Hotel Baltimore/Washington International Airport 1743 West Nursery Road, Baltimore, MD, 21090.
The room rate for NSTA symposium attendees is only $99.00 for a single or double occupancy room. The Marriott has a complimentary shuttle bus service available to bring you from the airport to the hotel.
Additional information on the NSTA 21st annually symposium will be posted periodically.
We look forward to seeing you there!
Dystonia Advocacy Coalition - Department of Defense Announcement December 21, 2009 The National Spasmodic Torticollis Association, a proud member of the Dystonia Advocacy Coalition (DAC), is pleased to announce the inclusion of dystonia on the list of diseases eligible for funding through the Congressionally Directed Medical Research Program. This achievement, reached after several years of tireless, collaborative efforts by the advocates of the DAC, now allows for members of the dystonia research community to apply for funds in support of their work. The Congressional Directed Medical Research Program (CDMRP) is funded through the Department of Defense via annual Congressional legislation known as the Department Appropriations Act (the support is in response to requests by consumer advocates and disease survivors). CDMRP will issue a program announcement for 2010 funding opportunities, including dystonia. National Spasmodic Torticollis Association joins with the other DAC member organizations, the Benign Essential Blepharospasm Research Foundation, DySTonia, Inc., the Dystonia Medical Research Foundation, the National Spasmodic Dysphonia Association, and the National Spasmodic Torticollis Association, to advocate for all persons affected by dystonia and supports a legislative and policy agenda that meets the needs of the dystonia community. Organizational members of the DAC will now work to promote this program to the dystonia research community to help advance dystonia research.
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