National Spasmodic Torticollis Association

welcome to our website

NATIONAL SPASMODIC TORTICOLLIS ASSOCIATION

OUR MISSION IS

To support the needs and well being of affected individuals and families;

To promote awareness and education;

To advance research for more treatments and ultimately a cure.

The National Spasmodic Torticollis Association

PATIENT SUPPORT

Over the years, National Spasmodic Torticollis Association (NSTA) has helped thousands of people in their search for relief from the pain and disability caused by ST.

Our services are available to anyone, and if you or someone you know has symptoms that are similar of that of Spasmodic Torticollis, please contact our office for more information and find out what we can do in terms of support.

Support Through Email - NSTAmail@aol.com

Do you have questions about your symptoms, available treatments, or anything else concerning spasmodic torticollis? You can email us your questions at NSTAmail@aol.com. We will do our best to answer any inquires you have.

NSTA Hotline - 1 800 487-8385

Finding someone who understand what you are going through is difficult when it comes to Spasmodic Torticollis. Sometimes family members and friends, with their good intentions cannot provide provide the level of support you require because they cannot understand what you are going through.

Our hotline is available Monday to Friday, 9:00am - 5:00pm, Pacific Time.

Informative Literature

The General Information Packet contains information about Spasmodic Torticollis, the treatments available and ways of coping. Contact our office to request a copy.

Support Through the ST Quarterly Magazine

The ST Quarterly magazine is a great source of information about research, treatments and ways of coping with this movement disorder.

Articles are submitted by neurologists, neurosurgeons, physical therapists and other physicians who specialize in movement disorders. The St Quarterly also contains articles submitted by people who have Spasmodic Torticollis. Four issues of the ST Quarterly magazine is included with a one year membership.

Support Groups & Contact People

Following is our list of support group leaders and NSTA contact volunteers. If you would like to talk to someone in your area who has ST (that is, an official NSTA Contact Volunteer) or if you are interested in joining a local support group, please contact the person on the list..

Or, if only your city is listed, please call the NSTA office at 1-800-487-8385 or e-mail us at NSTAmail@aol.com and if possible, we'll put you in touch with someone who lives near you.

  • Contact People and Support Group List - Please select your desired state below..
  • Alabama
  • Alaska
  • Arizona
  • California
  • Colorado
  • Florida
  • Georgia
  • Idaho
  • Illinois
  • Indiana
  • Iowa
  • Kansas
  • Louisiana
  • Maine
  • Massachusetts
  • Michigan
  • Minnesota
  • Mississippi
  • Nevada
  • New Hampshire
  • New Jersey
  • New Mexico
  • New York
  • N. Carolina
  • North Dakota
  • Ohio
  • Oregon
  • Pennsylvania
  • Rhode Island
  • S. Carolina
  • Tennessee
  • Texas
  • Utah
  • Virginia
  • Washington
  • Wisconsin
To view support groups and/or contact people simply select your desired state. If you are interested in joining a local support group, please contact the person on the list.

Alabama

Harpersville - Patt Wyatt - Group announcement
(205) 678-8557
pcangel1102@aol.com
www.dystonia-alabama.org

Talladega - Debbie Bowers
(256) 268-9357
debbieetress@yahoo.com

Alaska

Ketchikan - Melanie Isner
(907) 225-3449
akmellie@kpunet.net

Arizona

Pheonix - Lisa Rosenfield
willyivylisa@hotmail.com

Prescott - Gene Stys
(928) 776-1807

Tucson - Winnie Doerfer
quilterov@aol.com

California

Cuperino - Ruth Ann Hieta
(408) 257-7644
Rahieta@aol.com

Cypress - Allan Rataman
(714) 761-8881
alan.ratman@yahoo.com

Fairfield - Carol Flynn
Dystonia/Spasmodic Torticollis Group - Fairfield Group Announcement
(707) 429-9668

Fountain Valley - NSTA Office - OC Group Announcement
(714) 378-9837
NSTAmail@aol.com

La Mirada - Terresa Zambon
(714) 521-8918
roadrunnertz@aol.com

Long Beach - Ken Price
(562) 424-9082
kprice4000@aol.com

Pomona - NSTA Office - Pomona Support Group Announcement
(714) 378-9837
NSTAmail@aol.com

Redding - Lynda Lepore
(530) 241-0354
om2you@sbcglobal.net

Rosemead - R.J. Vasquez
(310) 242-1495
rjvasquez78@gmail.com

Roseville - Marge Wallace
(916) 782-5924
margewallace@comcast.net

Seal Beach - Patricia Davenport
(562) 431-7963
davenportp.om@gmail.com

Noreen Bricker Sterling
(707) 474-7898
noescabin21035@yahoo.com

Colorado

There are no support groups or contact people available in Colorado at this time.

Florida

Aventura - Daniel Sarper
(305) 781-4689
dansarper@gmail.com

Prescott - Catherine St. Onge
(928) 277-9310
stongeaz@cableone.net

Talahassee
Please contact the NSTA at 1-800-487-8385 for more information.
NSTAmail@aol.com

Georgia

Acworth / Marietta- Kathie Stehr
(770) 575-1683
kstehr@aol.com

Idaho

Boise - Taryn Hoffman
(208) 362-5720
ryntah@yahoo.com

Illinois

Springfield - Barbara Reno
(217) 529-3357
renobar2037@aol.com

Indiana

Mishawaka - August Baetsle
(574) 256-2058
010220230@mailstation.com

Iowa

Ames - Judy Burkart
(515) 292-8108

Eldridge - Cyndy Bauer
(563) 285-4688
cabauer42@aol.com

Kansas

Roeland Park - Janelle Lazzo
(913) 432-3675
janellelaz@aol.com

Kansas Group Announcemen

Louisiana

There are no support groups or contact people available in Louisiana at this time.

Maine

There are no support groups or contact people available in Maine at this time.

Massachusetts

There are no support groups or contact people available in Massachusetts at this time.

Michigan

Grand Rapids - (contact NSTA for information)

South Haven - Shirley Worden
(269) 487-8209
bswordenfl1@aol.com

Sterling Heights - (contact NSTA for information)

Huntington Woods - Corey Krause
(248) 399-6959
coreykrause@live.com

Support Group Announcement

Minnesota

Coon Rapids - Bonnie Warhol
bwarholmn@hotmail.com

Duluth - Patty (Garner) Mahan
Contact NSTA office for information

Minneapolis - Charlene Elliott
celliott@usiwireless.com

Mississippi

There are no support groups or contact people available in Colorado at this time.

Nevada

Carson City - Nora Wilson
(775) 882-7685
Norawilson@yahoo.com

Las Vegas - Maria Rabbio (contact NSTA for information)

Reno - Ira Gruber
(775) 348-7990 (please call after 3:00pm pacific time)
doctoriragruber@attn.com

New Hampshire

Hanover - Jane Barlow
(603) 643-1610

New Jersey

Mt. Laurel - Linda Shampine
(856) 520-3412
lmshemp@comcast.net

New Mexico

Santa Fe - Sandra Levine
(505) 466-4041
Levinesy@comcast.com

Albuquerque - A.J. Deguio
(505) 298-6129
deguio@comcast.net

New York

Glencove - Sylvia Tierney
(516) 676-4059

Grand Island - Ellen Alli
(716) 773-1225

Ithaca - Laberta McGruder - Ithaca Group Announcement
(607) 277-0587
msbird4@juno.com

Manlius - Betty Levine
Contact NSTA for information

New York City - Joan Miravite
(212) 844-6134

North Carolina

Shelby - Jo Ann Lankford
(704)482-6444
seallyj@aol.com

North Dakota

Bismarck - Jim Legerski
(701) 223-7813
Nlegerski@bis.midco.net

Ohio

Wooster - Barbara Sample
(928) 453-4642
barbaree3@yahoo.com

Oregon

There are no support groups or contact people available in Oregon at this time.

Pennsylvania

Pittsburgh - Ed Cwalinski
Contact NSTA for information

Pittsburg - Frances Lehman
(412) 366-3520
franlehman130@gmail.com

Johnstown - Linda Batey
(814) 536-0393

Harrisburg, Central Pennsylvania, Lancaster - Gregory M Huntingdon
(717) 545-4021
camphilllion55@yahoo.com

Rhode Island

Providence - Donna Schnell
(401)331-1721
dms010901@cox.net

South Carolina

West Columbia - Schnackenberg
(803) 739-0859
lindakaye43@aol.com

Tennessee

Nashville - Nashville Support Group
lookingforwardtn@gmail.com

Nashville Group Announcement

Knowville - Sandra Bogle
(865) 531-9280
skbogle@comcast.net

Texas

Houston / Jersey Village - John Barth
(713) 992-4274
johnbarth@me.com

Kerrville - Carol Harwell
(830) 826-5967
charwell@windstream.net

Frank Bollich, Ph.D.
(512) 260-0301
rasputin9@austin.rr.com

Utah

There are no support groups or contact people available in Utah at this time.

Virginia

Arlington - Margaret Teed
(703) 533-8698
teed-fam@verizon.net

Waynesboro - Evie O'Brien
(540) 942-2942
Contact NSTA for more information

Washington

Spokane - Denise Gibson
509-951-8480
denise@designden.com - please type "dystonia" in the "subject" header
www.dyscoveries.com

Wisconsin

Appleton - Lori Korbas
Contact NSTA for more information


NSTA Message Forum click here to join NSTA forum

The NSTA Message Forum is a great way to learn about Spasmodic Torticollis through the experience of others.

Message Forum posts are organized according to topic and you can search subjects to read archived posts. You can interact with others who understand spasmodic torticollis without leaving the comforts of your home.

How to Use the NSTA Bulletin Board?

Resources Page

The NSTA Resources Page contains hyperlinks to people and organizations that can provide additional information. Resource information can be found on the navigation bar at the top of the NSTA website page.