National Spasmodic Torticollis Association

welcome to our website



To support the needs and well being of affected individuals and families;

To promote awareness and education;

To advance research for more treatments and ultimately a cure.

The National Spasmodic Torticollis Association


Over the years, National Spasmodic Torticollis Association (NSTA) has helped thousands of people in their search for relief from the pain and disability caused by ST.

Our services are available to anyone, and if you or someone you know has symptoms that are similar of that of Spasmodic Torticollis, please contact our office for more information and find out what we can do in terms of support.

Support Through Email -

Do you have questions about your symptoms, available treatments, or anything else concerning spasmodic torticollis? You can email us your questions at We will do our best to answer any inquires you have.

NSTA Hotline - 1 800 487-8385

Finding someone who understand what you are going through is difficult when it comes to Spasmodic Torticollis. Sometimes family members and friends, with their good intentions cannot provide provide the level of support you require because they cannot understand what you are going through.

Our hotline is available Monday to Friday, 9:00am - 5:00pm, Pacific Time.

Informative Literature

The General Information Packet contains information about Spasmodic Torticollis, the treatments available and ways of coping. Contact our office to request a copy.

Support Through the ST Quarterly Magazine

The ST Quarterly magazine is a great source of information about research, treatments and ways of coping with this movement disorder.

Articles are submitted by neurologists, neurosurgeons, physical therapists and other physicians who specialize in movement disorders. The St Quarterly also contains articles submitted by people who have Spasmodic Torticollis. Four issues of the ST Quarterly magazine is included with a one year membership.

Support Groups & Contact People

Following is our list of support group leaders and NSTA contact volunteers. If you would like to talk to someone in your area who has ST (that is, an official NSTA Contact Volunteer) or if you are interested in joining a local support group, please contact the person on the list..

Or, if only your city is listed, please call the NSTA office at 1-800-487-8385 or e-mail us at and if possible, we'll put you in touch with someone who lives near you.

  • Contact People and Support Group List - Please select your desired state below..
  • Alabama
  • Alaska
  • Arizona
  • California
  • Colorado
  • Florida
  • Georgia
  • Idaho
  • Illinois
  • Indiana
  • Iowa
  • Kansas
  • Louisiana
  • Maine
  • Massachusetts
  • Michigan
  • Minnesota
  • Mississippi
  • Nevada
  • New Hampshire
  • New Jersey
  • New Mexico
  • New York
  • N. Carolina
  • North Dakota
  • Ohio
  • Oregon
  • Pennsylvania
  • Rhode Island
  • S. Carolina
  • Tennessee
  • Texas
  • Utah
  • Virginia
  • Washington
  • Wisconsin
To view support groups and/or contact people simply select your desired state. If you are interested in joining a local support group, please contact the person on the list.


Harpersville - Patt Wyatt - Group announcement
(205) 678-8557

Talladega - Debbie Bowers
(256) 268-9357


Ketchikan - Melanie Isner
(907) 225-3449


Pheonix - Lisa Rosenfield

Prescott - Gene Stys
(928) 776-1807

Tucson - Winnie Doerfer


Cuperino - Ruth Ann Hieta
(408) 257-7644

Cypress - Allan Rataman
(714) 761-8881

Fairfield - Carol Flynn
Dystonia/Spasmodic Torticollis Group - Fairfield Group Announcement
(707) 429-9668

Fountain Valley - NSTA Office - OC Group Announcement
(714) 378-9837

La Mirada - Terresa Zambon
(714) 521-8918

Long Beach - Ken Price
(562) 424-9082

Pomona - NSTA Office - Pomona Support Group Announcement
(714) 378-9837

Redding - Lynda Lepore
(530) 241-0354

Rosemead - R.J. Vasquez
(310) 242-1495

Roseville - Marge Wallace
(916) 782-5924

Seal Beach - Patricia Davenport
(562) 431-7963

Noreen Bricker Sterling
(707) 474-7898


There are no support groups or contact people available in Colorado at this time.


Aventura - Daniel Sarper
(305) 781-4689

Prescott - Catherine St. Onge
(928) 277-9310

Please contact the NSTA at 1-800-487-8385 for more information.


Acworth / Marietta- Kathie Stehr
(770) 575-1683


Boise - Taryn Hoffman
(208) 362-5720


Springfield - Barbara Reno
(217) 529-3357


Mishawaka - August Baetsle
(574) 256-2058


Ames - Judy Burkart
(515) 292-8108

Eldridge - Cyndy Bauer
(563) 285-4688


Roeland Park - Janelle Lazzo
(913) 432-3675

Kansas Group Announcemen


There are no support groups or contact people available in Louisiana at this time.


There are no support groups or contact people available in Maine at this time.


There are no support groups or contact people available in Massachusetts at this time.


Grand Rapids - (contact NSTA for information)

South Haven - Shirley Worden
(269) 487-8209

Sterling Heights - (contact NSTA for information)

Huntington Woods - Corey Krause
(248) 399-6959

Support Group Announcement


Coon Rapids - Bonnie Warhol

Duluth - Patty (Garner) Mahan
Contact NSTA office for information

Minneapolis - Charlene Elliott


There are no support groups or contact people available in Colorado at this time.


Carson City - Nora Wilson
(775) 882-7685

Las Vegas - Maria Rabbio (contact NSTA for information)

Reno - Ira Gruber
(775) 348-7990 (please call after 3:00pm pacific time)

New Hampshire

Hanover - Jane Barlow
(603) 643-1610

New Jersey

Mt. Laurel - Linda Shampine
(856) 520-3412

New Mexico

Santa Fe - Sandra Levine
(505) 466-4041

Albuquerque - A.J. Deguio
(505) 298-6129

New York

Glencove - Sylvia Tierney
(516) 676-4059

Grand Island - Ellen Alli
(716) 773-1225

Ithaca - Laberta McGruder - Ithaca Group Announcement
(607) 277-0587

Manlius - Betty Levine
Contact NSTA for information

New York City - Joan Miravite
(212) 844-6134

North Carolina

Shelby - Jo Ann Lankford

North Dakota

Bismarck - Jim Legerski
(701) 223-7813


Wooster - Barbara Sample
(928) 453-4642


There are no support groups or contact people available in Oregon at this time.


Pittsburgh - Ed Cwalinski
Contact NSTA for information

Pittsburg - Frances Lehman
(412) 366-3520

Johnstown - Linda Batey
(814) 536-0393

Harrisburg, Central Pennsylvania, Lancaster - Gregory M Huntingdon
(717) 545-4021

Rhode Island

Providence - Donna Schnell

South Carolina

West Columbia - Schnackenberg
(803) 739-0859


Nashville - Nashville Support Group

Nashville Group Announcement

Knowville - Sandra Bogle
(865) 531-9280


Houston / Jersey Village - John Barth
(713) 992-4274

Kerrville - Carol Harwell
(830) 826-5967

Frank Bollich, Ph.D.
(512) 260-0301


There are no support groups or contact people available in Utah at this time.


Arlington - Margaret Teed
(703) 533-8698

Waynesboro - Evie O'Brien
(540) 942-2942
Contact NSTA for more information


Spokane - Denise Gibson
509-951-8480 - please type "dystonia" in the "subject" header


Appleton - Lori Korbas
Contact NSTA for more information

NSTA Message Forum click here to join NSTA forum

The NSTA Message Forum is a great way to learn about Spasmodic Torticollis through the experience of others.

Message Forum posts are organized according to topic and you can search subjects to read archived posts. You can interact with others who understand spasmodic torticollis without leaving the comforts of your home.

How to Use the NSTA Bulletin Board?

Resources Page

The NSTA Resources Page contains hyperlinks to people and organizations that can provide additional information. Resource information can be found on the navigation bar at the top of the NSTA website page.