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NATIONAL SPASMODIC TORTICOLLIS ASSOCIATION
OUR MISSION IS
To support the needs and well being of affected individuals and families;
To promote awareness and education;
To advance research for more treatments and ultimately a cure.
When the basic treatments are unsatisfactory, some patients benefit from denervation surgery. The objective of the surgery is to selectively remove muscle motor nerves that actuate affected muscles.
The nerves selected for removal are those that carry the unwanted contraction signals. The result is improved muscle behavior, more normal posture, and significantly reduced pain. The success rate for this surgery is high, which is fortunate because it is irreversible.
The surgery is expensive and there is some risk, so doctors select patients carefully. Typically, the criteria are as follows:
Maximum benefit from surgery is obtained with post-operative physical therapy. Muscle therapy enables the patient to quickly acclimatize to the modified neuro-muscular situation and enjoy the benefits of the surgery.
If you are interested in learning more about this procedure or would like to speak with someone that has undergone this procedure, please contact the NSTA at 1-800-HURTFUL.